Tuesday 24 June, 2025

National Patient Data Day 2025

Please join us in Leeds on 24 June 2025 for the inaugural use MY data National Patient Data Day Conference (#NPaDD2025) and the launch of the first National Patient Data Awareness Day. 

 ** Registration is now closed - join the waitlist**  

NPaDD is a patient data conference with a difference. It is patient-designed and patient-driven.  NPaDD will bring together a live audience of 250 patients, relatives and carers, alongside a diversity of stakeholders in the patient data world, including health professionals, researchers, data controlling bodies, commercial data users, policy organisations, and media. 

The full conference programme is now confirmed and is available for download:

 ** Download the programme **  

Speakers include:  

Dr Nicola Byrne  
National Data Guardian for Health & Adult Social Care in England

Rory Cellan-Jones
Independent journalist
use MY data Member

Professor Pearse Keane
Professor of Artificial Medical Intelligence at UCL Institute of Ophthalmology
Consultant ophthalmologist at Moorfields Eye Hospital NHS Foundation Trust
Director of the INSIGHT health data research hub programme, based at Moorfields Eye Hospital

Ming Tang
Chief Data and Analytics Officer, NHS England
Co-chair, Data & technology, 10 Year Health Plan working group

Why you should attend

NPaDD is unique. It is the first patient data conference of its kind where patients set the agenda. The conference will drive forward our vision of every patient in the UK willingly giving their data to support medical research and their own care. It will champion the use of patient data across the four nations of the UK and will promote:

• use MY data’s influential work to promote the use of patient data to improve outcomes and save lives
• patient voices to shape the patient data agenda, through a strategy of positive engagement

Look forward to . . .

• Keynote speakers
• Roundtables
• Panel discussions
• Patient Data Soapbox
• Networking on Data Street

With thanks to our sponsors, whose support has made this event possible:

Ahead of National Patient Data Day we invited each of our event sponsors to write a blog describing their role as custodians of patient data in their work as researchers and/or how they champion the patient voice through public engagement.  You can read these blogs here as they are published in the run-up to the event. 

Our GOLD sponsors:
Blog: Why the pharmaceutical industry needs NHS data to develop new medicines	Blog: "Championing public voices in data research"	Blog: "Public and Patient Involvement and Engagement (PPIE) must lead the way in data partnerships: Flatiron Health UK’s why, what and how"
Blog: "Championing Patient Voices: HDR UK Backs the UK's First National Patient Data Conference"	Blog: "Making patient data life changing: how LifeArc uses data to accelerate impact for people with rare diseases"	Blog: "Putting People First in Data Science: PEDRI’s Mission to Make Public Engagement the Norm"
Our SILVER sponsors:
Blog: "Valuing patients and their data, the NHS and the life sciences industry: How and why Arcturis conducts health research"	Blog: "From Privacy to Progress: The Power of Secure Data in Health Research"	Blog: "Why adding GP data to UK Biobank will be transformational for research"
With support from:

Sponsorship opportunities

There are still opportunities for sponsors to play a pivotal role in the launch of this unique patient data event, at a critical moment for the NHS.  Your support could help to underpin event running costs, enable patients, relatives and carers to attend (ensuring they are not financially disadvantaged) and help to transform the patient data landscape.

To find out more, please contact Georgina, our Event Manager georgina@usemydata.org.uk.