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National Patient Data Day 2026
Join use MY data and a panel of patients and professionals from across the patient data world on 24 June 2026 for the most important patient data debates of the year.
We are excited to announce that use MY data will be marking National Patient Data Day 2026 on Wednesday 24 June with two free public webinars celebrating the use of patient data across the four nations of the UK - the success stories, the achievements and the opportunities ahead, and debating how to overcome the challenges to ensuring our health data is used to save lives and improve outcomes for all. This year's event is online to make it as easy as possible for you to attend wherever you live in the UK and to encourage the widest participation.
And it is not just use MY data who will be celebrating. Across the month of June, we are inviting organisations from around the UK to join in with their own events under the National Patient Data Day umbrella to showcase and celebrate their work with patient data for the benefit of all.
Wednesday 24 June: Part 1: 9:00-10:30 am ❘ Part 2: 1:30-3:00pm ❘ online ❘ FREE
Find out more & register here
We are very pleased to announce that the Cancer Research UK (CRUK) grants panel has renewed our funding for the next four years from April 2026. We are hugely grateful to CRUK for its continued support and vote of confidence in our work. This significant funding ensures that we can develop and extend our output and representation on behalf of ALL patients and disease areas and strengthen our efforts to influence better use of data across the UK.
CRUK’s Matt Howard Murray - Public Involvement Lead (Research Data Strategy) - said:
“Cancer Research UK is delighted to continue our support for use MY data over the next four years. use MY data has established itself as the pre-eminent trusted patient voice around patient data and has a growing track record of effective advocacy, policy change and strategic advice to the research community across a number of conditions, including cancer. Over the next four years we look forward to seeing use MY data deliver even more impact for patients across the UK.”
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Championing patient voices at National Patient Data Day
“Where else could I as a patient get the chance to sit next to Ming Tang and bend her ear?”
“I am not sure how it could be bettered; for an inaugural event you have a set a very high bar.”
Over 200 delegates - use MY data Members, patient-delegates, policy makers and researchers from around the UK gathered in Leeds on June 24th for the UK's first ever National Patient Data Day (NPaDD2025). This was a health data conference with a difference, one where patients set the agenda and led the discussions and where delegates and speakers met as equals.
use MY data’s position on the Health Data Research Service (HDRS)
use MY data is offering our services to the HDRS, to Wellcome Trust and to the Government, to make sure that patients are involved from the outset in planning, describing and promoting the potential benefits of the HDRS, the processes and the safeguards, and in developing a robust, comprehensible, clear and open transparency framework to retain public trust.
use MY data in the Financial Times
“I naively thought that the NHS, being a national organisation, would have access to data just like a bank or building society.”
use MY data Member David Snelson told the FT how he navigates the NHS's maze of systems for collecting and sharing the patient data required to manage his care.
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Our must-read weekly newsletter, exclusively for Members: Patient Data & Engagement Roundup brings you the latest patient data stories and PPIE opportunities direct to your inbox every Thursday.
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