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What's happening in the patient-data world
Championing patient voices at National Patient Data Day
“Where else could I as a patient get the chance to sit next to Ming Tang and bend her ear?”
“I am not sure how it could be bettered; for an inaugural event you have a set a very high bar.”
Over 200 delegates - use MY data Members, patient-delegates, policy makers and researchers from around the UK gathered in Leeds on June 24th for the UK's first ever National Patient Data Day (NPaDD2025). This was a health data conference with a difference, one where patients set the agenda and led the discussions and where delegates and speakers met as equals.
Conference highlights coming soon...
use MY data’s position on the Health Data Research Service (HDRS)
use MY data is offering our services to the HDRS, to Wellcome Trust and to the Government, to make sure that patients are involved from the outset in planning, describing and promoting the potential benefits of the HDRS, the processes and the safeguards, and in developing a robust, comprehensible, clear and open transparency framework to retain public trust.
use MY data in the Financial Times
“I naively thought that the NHS, being a national organisation, would have access to data just like a bank or building society.”
use MY data Member David Snelson told the FT how he navigates the NHS's maze of systems for collecting and sharing the patient data required to manage his care.
The week’s patient data news straight to your inbox
Our must-read weekly newsletter, exclusively for Members: Patient Data & Engagement Roundup brings you the latest patient data stories and PPIE opportunities direct to your inbox every Thursday.
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“Yours is certainly the best newsletter in the health-data field” - Member
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